Endocrinology
Adaptation and validation of the French version of theHypoparathyroid Patient Questionnaire 28 (HPQ28) in theComPaRe-Epi-Hypo e-cohort
Jean-Philippe Bertocchio • Jessica Soyer • Natalie Grosset • Delphine Bessonies • Christelle Nidercorn • Coralie Sido • Viet-Thi Tran • Leslie Toko-Kamga • Isabelle Pane • Akram Hecini • Heide Siggelkow • Pascal Houillier
Neurology, Myasthenia
SPOON: an observational, crosssectional study of perceptions and expectations of adults with generalised myasthenia gravis in France
Jean-Philippe Camdessanché • Sabrina Sacconi • Annie Archer • Pierre Boulanger • Anne Crochard • Jean-Philippe Bertocchio • Aliénor Richard • Pierre-Edouard Villy • Guilhem Solé
Infectious diseases, COVID-19
Course of post COVID-19 disease symptoms over time in the ComPaRe long COVID prospective e-cohort
Viet-Thi Tran • Raphaël Porcher • Isabelle Pane • Philippe Ravaud
Osteoporosis, Osteoarthritis, Asthma, Cardiovascular diseases, Diabetes, Endometriosis
Patients' Perspectives on Transforming Clinical Trial Participation: Large Online Vignette-based Survey
Van Thu Nguyen • Philippe Ravaud • Viet Thi Tran • Bridget Young • Isabelle Boutron
Endocrinology, Diabetes
An International, Mixed-Methods Study of the Perceived Intrusiveness of Remote Digital Diabetes Monitoring
Theodora Oikonomidi, MSc • Philippe Ravaud, MD, PhD • Arthur James, MD, MSc • Emmanuel Cosson, MD, PhD • Victor Montori, MD, PhD • Viet-Thi Tran, MD, PhD
Dermatology, Hidradenitis suppurativa
Baseline Characteristics of a National French E-Cohort of Hidradenitis Suppurativa in ComPaRe and Comparison with Other Large Hidradenitis Suppurativa Cohorts
Morgane Condaminaa • Laetitia Penso • Viet-Thi Tran • Claire Hotze • Philippe Guillem • Axel Patrice Villanij • Pierre Perrot • Marie-France Bru • Eric Jacquet • Aude Nassif • Hervé Bachelez • Pierre Wolkenstein • Marie Beylot-Barry • Marie-Aleth Richard • Philippe Ravaud • Manuelle Viguier • Emilie Sbidian
Endocrinology, Diabetes
Evaluation of Patient Willingness to Adopt Remote Digital Monitoring for Diabetes Management
Theodora Oikonomidi, MSc • Philippe Ravaud, PhD • Emmanuel Cosson, PhD • Victor Montori, PhD • Viet Thi Tran, PhD
Chronic diseases, COVID-19
Impact ofan interactive web tool onpatients’ intention toreceive COVID-19 vaccination: abefore-and-after impact study amongpatients withchronic conditions inFrance
Viet‑Thi Tran • Stéphanie Sidorkiewicz • Clarisse Péan • Philippe Ravaud
Dermatology, Vitiligo
Factors associated with perceived stress in patients with vitiligo in the ComPaRe e-cohort
Morgane Condamina, MD • Jason Shourick, MD • Julien Seneschal, MD, PhD • Emilie Sbidian, MD, PhD • Nicolas Andreu • Isabelle Pane • Philippe Ravaud, MD, PhD • Viet-Thi Tran, MD, PhD • Khaled Ezzedine, MD, PhD
Infectious diseases, COVID-19
Development and Validation of the Long Coronavirus Disease (COVID) Symptom and Impact Tools: A Set of Patient-Reported Instruments Constructed From Patients’ Lived Experience
Viet-Thi Tran • Carolina Riveros • Bérangère Clepier • Moïse Desvarieux • Camille Collet • Youri Yordanov • Philippe Ravaud
Pneumology, Asthma
Belief and adherence to COVID 19-lockdown restrictions in patients with asthma versus other chronic diseases: results from a cross-sectional survey nested in the ComPaRe e-cohort, in France
Camille Taillé • Nicolas Roche • Florian Tesson • Coralie Tardivon • Viet-Thi Tran • Camille Couffignal
Infectious diseases, COVID-19
COVID-19–related perceptions, context and attitudes of adults with chronic conditions: Results from a cross-sectional survey nested in the ComPaRe e-cohort
Viet-Thi Tran • Philippe Ravaud
Psychiatry, Depression
Identifying outcomes for depression that matter to patients, informal caregivers, and health-care professionals: qualitative content analysis of a large international online survey
Astrid Chevance • Philippe Ravaud • Anneka Tomlinson • Catherine Le Berre • Birgit Teufer • Suzanne Touboul • Eiko I Fried • Gerald Gartlehner • Andrea Cipriani • Viet Thi Tran
Chronic diseases
Collaborative open platform E-cohorts for research acceleration in trials and epidemiology
Viet-Thi Tran • Philippe Ravaud
Chronic diseases
Patients’ perspective on how to improve the care of people with chronic conditions in France: a citizen science study within the ComPaRe e-cohort
Viet-Thi Tran • Carolina Riveros • Clarisse Péan • Arnaud Czarnobroda • Philippe Ravaud
Chronic diseases
Is My Patient Overwhelmed?: Determining Thresholds for Acceptable Burden of Treatment Using Data From the ComPaRe e-Cohort
Viet‑Thi Tran, MD, PhD • Victor M. Montori, MD, MSc • Philippe Ravaud, MD, PhD
Chronic diseases
Patients’ views of wearable devices and AI in healthcare: findings from the ComPaRe e-cohort
Viet-Thi Tran • Carolina Rivero • Philippe Ravaud
